Monday, November 12, 2012

Saying Good-Bye to Baby Clothes

This little outfit now has a new home!
Luke - 6 months
Ruth and I have been going through Luker's infant clothing and selling them as lots on Craigslist. Last night I brought a Rubbermaid tub up full of his 6 month clothing to be gone Monday morning. Ruth opened it and started reminiscing on some of the clothing and memories connected to it. She got that look like she regretted putting it up for sale. Oh no! No no no no....please don't start that!! I started to try to think of something to reassure her these clothes needed to go (a long with the other 57 tubs of clothing!) even though I shared some of the same feeling as I remember how small he was then compared to a now 3T.


I have been following Dan and Christine Lawson of Fergus Falls, parents to 3 year old Isaiah whose fighting Neuroblastoma, a rare childhood cancer. This is the same cancer that baby Natalia Dorsey fought. Natalia was just 5 months old when I met her and her brothers, the first family I ever nannied for. I really don't know how Dan and Christine do it. They have amazing faith and every journal entry they write, I'm inspired. Once you read it, you'll know what I'm talking about.
This morning as I read Christine's entry, my heart swelled and tears dripped down my cheeks as I read how it was difficult for her to pack up Isaiah's things as they get ready to move into a new house (their current home is not suitable for Isaiah's immune system any longer).
I've copied and pasted her journal entry this morning...


Cycle 2 Immunotherapy begins

Written 1 hour ago
This morning Isaiah and Dan are on their way to Fargo for cycle 2 of  Isaiah's immunotherapy. Isaiah will be admitted to the Pediatric Intensive Care Unit at 8:00 a.m. I will join them later today after getting the two other children situated in Fergus with Auntie Lisa. 

Isaiah will be admitted for 12 days. Quite a stent. This round is sort of a double whammy of drugs back to back, thus the long hospital stay. We anticipate a rough road with side effects more difficult than cycle 1 of immunotherapy (because of the drug combination). Dan was able to take off the time from school, so the 3 of us will be there together. 

In the meantime, our current home will get pack up and put into storage bins. We need to be ready to move from our current home November 30th. Our move in date to Isaiah's house sometime the first week of December. We will stay with family days in between until the house is ready. At this point, we don't anticipate Isaiah coming back to this house because of all the dust that will be rustled up. Isaiah's new address is 

          1526 North Cleveland, Fergus Falls, MN 56537

Before we can move into Isaiah's new house, everything has to be wiped down/washed down everything, before we can move in. Isaiah will pass his 100 day mark during this hospital stay and his medication regiment will change. 

If you are on Facebook there is a Friends of Isaiah page you can watch for needs we may have during these next few weeks related to moving, preparing Isaiah's house, caring for Isaiah at the hospital or our other children who will be separated from us. 

The word FRAGMENTED has been lingering in my once again. I am not a procrastinator, but last night I could not get myself to pack up Isaiah's things. I just didn't want him to go again. My mama bear heart wants to protect him......but I know we are protecting him from what may come. This is theBEST POSSIBLE treatment we know right now. 

Knowing how weak and helpless I felt last night and knowing how WEAK and HELPLESS Isaiah will feel, there is no better place to fall than to Our Rock. He is still waiting at the bottom to catch us, sustain us, encourage us, rebuild us and strengthen us in every circumstance, no matter our inadequacy, helplessness or fear. He will be there. He will show up. God, my Father, my Firm foundation, my Mighty Fortress will be there. He will display his boundless mercy, enduring faithfulness and unhindered love to Isaiah. With prayer and thanksgiving (in all circumstances) we will put one foot in front of the other and move forward. 

This hour, we will pick up our son, take our first step and walk in faith towards healing.



Here's more of Isaiah's Story.

Perspective.
Once again, my perspective this morning has changed.
As you start your work weeks and groan about another "Monday...Monday", I hope your tone, attitude and perspective has changed after reading. I know mine has!

Thank you Jesus for my beautiful niece and nephews and their health.
Please keep the Lawsons in your prayers.